About

Life Without A Fork was founded by Vanessa Williams in 2009 initially as a documentary film project to bring awareness to the rare, potentially fatal condition from which she was diagnosed in 2006, idiopathic angioedema. Since then, her efforts have grown to her becoming, inarguably, the world’s leading advocate for Recurring Idiopathic Angioedema (RIA) and creating the Idiopathic Angioedema Global Advocacy Group. Executive Producer of the feature length film which started this movement, Life Without A Fork also does ongoing research and outreach for Bradykinin Mediated Angioedema (BMA), Mast Cell Activation Disorders (MCAD), idiopathic anaphylaxis (IA), urticaria (hives), mental health diseases–“Dis-ease of the mind causes disease in the body,” her mom, Katie Tucker often told her–as well as other, seemingly overlapping conditions.We hope you get the answers to your many questions about idiopathic angioedema–particularly those of which, ‘you do not know, you do not know’ as they are often the toughest to ask, yes? and gain the support of a global community of fellow-sufferers who understands the many extremities of your ongoing, ever challenging, and far too frequently changing circumstances.May our outreach efforts, Idiopathic Angioedema Global Advocacy Group, feature length film, Life Without A Fork, documentary, {see trailer with the film’s stars, Vanessa Williams and Leading Angioedema Specialist, Dr. Marc Riedl of US HAEA Angioedema Center–UCSD}, and abundance of many other resources–yes, we’ve been doing this long time, help be your roadmaps in finding guidance as to why, how, and where to seek the best and most current in qualitative medical treatments the world over as well as help find the reassurances you may need in knowing that, although absolutely, ofttimes relentlessly, bizzaro and potentially fatal, with proper care, these conditions can be manageable and usually survivable.Help get the word out! We need A-list celebrities and media attention around this cause and like, yesterday–Oprah, come find us! Tell everyone you know what, Life Without A Fork is doing to raise awareness around angioedema and save lives! Tell us who and what you know! Donate whatever you can! Let us know how you feel you may best assist!The Life Without A Fork Team:Top to bottom/right to left:| Vanessa Williams | Founder and CEO | Leading Angioedema Global Advocate | Producer | Master of Arts | Educational Theory

| Vanessa Williams | Founder and CEO | Leading Global Advocate | Producer |
| Marcus Anderson | Director | Fine Arts Artist | Humanities |
| Kelly Hilaire | Director | Sports Marketing & Management |
| Katya Williams | President | Director | YouTube Personality | Actress |
| Chill Will | Director | Professional Music Entertainer | #TheGetFreshCrew |

 

Source: About

Published by lifewithoutafork

In 2006, I was diagnosed with the rare and potentially fatal condition known as Idiopathic Angioedema, a histamine mediated condition that causes swelling and similar symptoms that can be brought on by little to no reason. Angioedema’s Idiopathic form is different from other forms of Angioedema in that it is not known to be of a hereditary accumulated and any specific genetic tie-ins and causes are generally unknown. A few years following my initial diagnoses I began to put intentional efforts towards advocating for cause and cure for both myself and all others that have been diagnosed with this detrimental condition. For the last eight years I have personally and with very little help, funded our advocacy efforts–in every spectrum, grown and withheld an international community base, spoken at health expos, in local schools and more about this condition, as well as written, filmed, edited, and produced a documentary film known as Life Without A Fork, telling the story of Angioedema. I have even lost my sister and many others from the condition and very recently discovered that, in addition to my nephew who was diagnosed before me, I have a brother, two sisters and an aunt who have all experienced both acute and chronic cases of idiopathic angioedema. In 2014 I coined the phrase, #The80Percent as a means of distinguishing our number and the need for right attention for the largest group of people living with this rare condition, the idiopathics! Our efforts to raise awareness round Idiopathic Angioedema and save lives, are in need of assistance! Supporting this entire advocacy all on my own is no longer an option as I am now disabled. With our 501(c)(3) non- profit organization being newly established, I appreciate any relating assistance that you may be able to provide, even sharing our efforts with your friends and family. Having started in 2009, advocating for this cause and producing a feature film has been a journey and then some! I am ill with the condition, #IdiopathicAngioedema, so it remains extremely challenging for me to forge on with taking this project to the finish line. I have been offered help, countless times and sometimes, it really gets me down when the follow-through doesn’t actually come. Oft times, it gets me to the point that I just want to say, with all the pleasantries I can muster, “no, thank you.” Doors opening and closing as quickly as the turn-style types to be found in mid-town Manhattan’s office buildings, I continue to persevere as I have finally completed, Life Without A Fork, documentary film! This project, while certain to impact audiences around the globe with its rich, vivid, and most certainly, shocking images, along with its bigger than life storylines, will also serve as advocacy to help save lives, yes, mine included, thank you very much! :), by getting some, ‘right attention,’ around #ChronicAngioedema. Absolutely a project that is near and dear to my heart, I work hard to find cause and cure for this potentially life-threatening disease. For my reward, God has not only been steadfast in his willingness to help me make this happen, he continues to remind me that, as per the great words shared by my mom, the late, Katie Tucker, “Every man is a golden link in the chain of my good.” And, although I may be flying without a net, it is through the endless source of support I receive from others, like you who are His angels and are amongst my family, friends, fellow-sufferers, fans, celebrity associates, and overall well-wishers, I fly forever on God’s wings.

<span>%d</span> bloggers like this: