The Swell Diaries

03.20.17 | PEACE. BE STILL.

I have had a great deal of people openly express the new energy that has come with this New Year.

Within the first 25 days of the year alone so many things, major to the world at large, has transpired. There has been an inauguration of a new president of the United States.

A, “Million Woman’s March,” that brought with the energy needed for the newer female leaders to come, that far exceeded any other such rally in history—thereby, almost effortlessly, becoming an event to write into her-story, unto itself.

A unique Summer Solstice, lunar eclipses, solar eclipses, meteor showers and many other world-altering events that have happened to shape my personal journey.

I have become a world-class presence with a force of peace and love that I have not been able to restrict to any one person, place or agenda.

A global advocate for the rare condition, idiopathic angioedema (as well as the best in mental health), I have already taken my outreach throughout the Hollywood, San Diego, Orange County, Long Beach, and Los Angeles regions of Southern California as well as the five Burroughs of New York City, and have been fortunate enough to touch many more lives and give hope to countless new people surviving this life threatening condition.

More people have been able to find us on social media and I have made myself personally available to countless others both in person and by telephone.
I love what I do and the opportunities I am afforded with helping even one more person get through a day with angioedema, mast cell activation disorders, urticaria or any other chronic condition.

Being challenged with idiopathic angioedema, having more near death experiences than I can remember, swelling and not being able to tolerate foods for periods that would have defeated even the strongest, even rugged of men, becoming disabled and unable to earn money for food for myself or my child, these things were necessary for me to become this woman with the amazing new abilities I now feel I have and is what will drive me and strengthen my ways of caring for others as we go into 2018 and beyond. #TheFutureIsNow!



via The Swell Diaries

Published by lifewithoutafork

In 2006, I was diagnosed with the rare and potentially fatal condition known as Idiopathic Angioedema, a histamine mediated condition that causes swelling and similar symptoms that can be brought on by little to no reason. Angioedema’s Idiopathic form is different from other forms of Angioedema in that it is not known to be of a hereditary accumulated and any specific genetic tie-ins and causes are generally unknown. A few years following my initial diagnoses I began to put intentional efforts towards advocating for cause and cure for both myself and all others that have been diagnosed with this detrimental condition. For the last eight years I have personally and with very little help, funded our advocacy efforts–in every spectrum, grown and withheld an international community base, spoken at health expos, in local schools and more about this condition, as well as written, filmed, edited, and produced a documentary film known as Life Without A Fork, telling the story of Angioedema. I have even lost my sister and many others from the condition and very recently discovered that, in addition to my nephew who was diagnosed before me, I have a brother, two sisters and an aunt who have all experienced both acute and chronic cases of idiopathic angioedema. In 2014 I coined the phrase, #The80Percent as a means of distinguishing our number and the need for right attention for the largest group of people living with this rare condition, the idiopathics! Our efforts to raise awareness round Idiopathic Angioedema and save lives, are in need of assistance! Supporting this entire advocacy all on my own is no longer an option as I am now disabled. With our 501(c)(3) non- profit organization being newly established, I appreciate any relating assistance that you may be able to provide, even sharing our efforts with your friends and family. Having started in 2009, advocating for this cause and producing a feature film has been a journey and then some! I am ill with the condition, #IdiopathicAngioedema, so it remains extremely challenging for me to forge on with taking this project to the finish line. I have been offered help, countless times and sometimes, it really gets me down when the follow-through doesn’t actually come. Oft times, it gets me to the point that I just want to say, with all the pleasantries I can muster, “no, thank you.” Doors opening and closing as quickly as the turn-style types to be found in mid-town Manhattan’s office buildings, I continue to persevere as I have finally completed, Life Without A Fork, documentary film! This project, while certain to impact audiences around the globe with its rich, vivid, and most certainly, shocking images, along with its bigger than life storylines, will also serve as advocacy to help save lives, yes, mine included, thank you very much! :), by getting some, ‘right attention,’ around #ChronicAngioedema. Absolutely a project that is near and dear to my heart, I work hard to find cause and cure for this potentially life-threatening disease. For my reward, God has not only been steadfast in his willingness to help me make this happen, he continues to remind me that, as per the great words shared by my mom, the late, Katie Tucker, “Every man is a golden link in the chain of my good.” And, although I may be flying without a net, it is through the endless source of support I receive from others, like you who are His angels and are amongst my family, friends, fellow-sufferers, fans, celebrity associates, and overall well-wishers, I fly forever on God’s wings.

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