DID YOU KNOW…

Angioedema is an orphan’s disease with three distinct classifications?

– Idiopathic Angioedema…

comprises nearly 80% of all cases of angioedema, yet is less known than similarly, “new on deck,” conditions such as ‪#‎Fibromyalgia‬ and ‪#‎Lupus‬, is finally gaining interest in the medical and pharmaceutical communities and now is the time to get that major financial backing for research, education, and outreach going in the right direction for cause and cure!!!

We have discussed this with professionals involved in this process and they have agreed with me, it is a numbers’ game. Higher numbers of our population equates to what’s in it for them which is why your likes and participation in our this funding campaign, our online discussions, films and events really all it takes to grow this effort at the pace we need–in place of time being lives we feel it’s important to give people with angioedema a chance to focus on time for living and we know you agree!

– Hereditary Angioedema…

comprises just under 20% of all forms of the condition, has a great organization with great philanthropy, and although still an orphan’s disease, has established itself, at the very least, as being a condition of note meaning, unlike #The80Percent, it is officially on the map!

– Bradykinin Mediated Angioedema…

(Say what, now?!), comprises about 2% of all cases, worldwide! Oh, and I know those two people. wink emoticon Not much is known about this most rarest form and, although sufferers mainly respond to medications as given to HAE patients, they do not receive nearly the same level of interest in research dollars and getting meds tailored specifically to the uniqueness of their disease. Again, the numbers.
Note: There are subclasses within each classification.

Please join us in getting some right attention around idiopathic and all forms of angioedema as well as the related conditions of #mastcellactivationdisorders, #anaphylaxis, #urticaria, and #Crohns.

 

#TheLifeWithoutAForkIdiopathicAngioedemaAdvocacyGroup | #MayYourSwellsForeverBeMinimalatMost | #VanessaWilliams | #KatyaWilliams | #ChillWill | #KellyHilaire

 

via #The80Percent